ALL CONTENT, INCLUDING PHOTOS, IMAGES AND TEXT THAT APPEAR ON THIS BLOG ARE THE COPYRIGHTED PROPERTY OF THE AUTHOR. COPYING, SAVING, OR DISTRIBUTING IN ANY MANNER WITHOUT THE EXPRESS CONSENT OF THE AUTHOR CONSTITUTES COPYRIGHT INFRINGEMENT AND IS PUNISHABLE BY LAW.
Connecting the Rainbow
"Y'all - don't miss it. Don't get so caught up in what your sweet baby is doing or not doing. Don't obsess about this step or the next step or the one after that or what is going to happen twenty years down the line. Because one day you'll look at baby pictures and think about how adorable that baby was and how all you can remember is therapy and you can't even remember what her hair smelled like. So, ENJOY your baby. It doesn't matter when they walk or crawl or talk. It matters that they are here and that you love them and that they know it. Just don't miss it."
Lisa (aka Me/Mama): I'm the one who does the blogging. I'm a stay-home mom, formerly a paralegal. I'm a Starbucks addict who swears like a truck driver, and loves to read and write. I never, in my wildest dreams, imagined that I'd one day be the mother of six children, let alone the mother of a child with Down syndrome (but, really, who does imagine these sorts of things?). I'm an atheist, so I don't go in for these notions that Finn is a special gift from God or a divine messenger of any sort. Finding out my baby has Ds was, for me, like having all my dreams cave in - that's how it felt for a while. I'm pretty much over it these days, though. I really wouldn't change anything about Finn, and am completely wild about him and thankful for the gifts of wisdom and perspective I've gotten because of him, although the sting of having a child who is different is always there on some level. I don't blow sunshine up anyone's #%@; I tell it like it is, at least as far as how I see it. Sometimes it's pretty, sometimes it's not.
Michael (aka Daddy): I'll keep his bio brief since he never asked to have the world in his business! Michael is an attorney, a talented musician, and a devoted husband and father. He's the kind of dad who has impromptu dance parties in the living room with the kids. Fortunately, he's a smart-ass like me, so we get along well. Prior to morphing into an attorney, Michael worked in the disability field for many years, first as a caretaker in a residential facility for adults with such disabilities as autism, blindness, deafness, blind/deaf, and cerebral palsy. He later went into deaf advocacy and taught himself American Sign Language to the point of fluency, and worked as a sign language interpreter for several years. He remarked once shortly after Finn was born that it felt like maybe all those years working with people with different disabilities was in preparation for his role as a parent of a child with Down syndrome.
Kevin: Our oldest, he loves to read and write and make stop action movies. Kevin is a bright, sensitive, compassionate young man who has taken it upon himself to learn about Down syndrome and become an advocate (in case you haven't seen it, check out the speech he gave in front of his student body, bringing the house down). He dotes on Finn, and the 11 years between them is no barrier.
Joey: Kid #2 for us, Joey is 6 years older than Finn. He's into math, music, and baseball. Joey knows that Finn has Down syndrome, but only has a rudimentary understanding of what that means. To him, Finn is just Finn, and he likes him just the way he is.
Daisy & Annabelle: The Dynamic Duo, otherwise known as The Twins, they are 4 years older than Finn (do you see a pattern here? Yes, for a number of years, we added to our family every other year; it became a tradition). They're sweet, mischievous, and will probably be the death of me. Like Joey, they know that their baby brother has something called Down syndrome, but you might as well tell them that he's discovered the Meaning of Life - it just doesn't mean anything to them. Which, at this point, I think is nice. They just adore Finn.
Lilah: Our baby girl, she's 21 months older than Finn. Aside from the twins, Lilah and Finn are the closest in age of our kids, and they share a very close, special relationship. Lilah just thinks Finn is the best thing to come along since . . . well, since anything. Sometimes watching the two of them together gets me all verklempt.
On July 7, 2008 our sixth child, Finnian, was born at home into loving hands. Shortly after he was born, we learned that he has Down syndrome. This is the ongoing story of how our family is being transformed by this little boy.
Hi! I'm Lisa, a 40-something Wonder Mom to six kiddos: Kevin (14), Joey (9), twins, Annabelle and Daisy (6), Lilah (4) and Finnian (3). Oh, and my husband is the multi-talented Michael. He tries to keep me in check, but I just keep on writing.