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Connecting the Rainbow
"Y'all - don't miss it. Don't get so caught up in what your sweet baby is doing or not doing. Don't obsess about this step or the next step or the one after that or what is going to happen twenty years down the line. Because one day you'll look at baby pictures and think about how adorable that baby was and how all you can remember is therapy and you can't even remember what her hair smelled like. So, ENJOY your baby. It doesn't matter when they walk or crawl or talk. It matters that they are here and that you love them and that they know it. Just don't miss it."
You know those coffee table books full of artistic photgraphs of babies and children? I'd love to see one full of photos of babies and children with Down syndrome. People need to see how beautiful these children are. Wouldn't that be a wonderful thing to see on the shelves of book stores in time for next year's Down Syndrome Awareness Month? I wonder how one can go about making something like that happen . . .
You just do it like everything else you've always done, Lisa! You can, I know you can. Start collecting photos now from every contact you have...and make contact with the organizers of any and all DS groups...from medical to emotional support...I bet one or more of those groups can put you in touch with a publisher and/or point you in the direction of self-publishing. Great idea!!!
I agree and would love to help you! I have an amazing photographer as well that might like to get involved and could possibly donate her time/services so that all the photos have the same "vibe". I know there are video montages on you tube with some of the most gorgeous photos of kids and babies with down syndrome so it totally is possible!!! You GO girl!!! Jen
hey, i have one for you! it's a very obscure book, hard to find, but beautiful too...i've been wanting to find a home for it. send me your address and i'll mail it to you!
I definitely think we need one state-side...been thinking about it for a long time...but I was also wondering if you've heard of Conny Wenk? Scroll through her blog...you will be amazed at the photos. Not all the kids have DS...but MANY MANY MANY of them do.
What a beautiful idea Lisa!!!. I will LOVE to see MANY books full of photos of individuals with Ds, all ages. I will be the first one (or one of the first)to buy them. :)
I have a link for you: Not the same exact thing, but a coffee table type book.
http://www.bandofangels.com/
The book is called: Common Threads.....
Cynthia Kidder [the founder] also beautiful note cards and calendars.
Also, we should hire Conny Wenk from Germany.....go to this link and keep scrolling.....you'll be in heaven of all the beautiful people she photographs with Down syndrome [I think she needs to come to the States and photograph Sir Finnian] http://www.connywenk.blogspot.com/
and the current link I put on my blog had a project that is being done in the UK of professional photographers and people with T21...they have a calendar, but not a coffee table book as of yet.
I think you are on to a beautiful project [and I'll buy the first copy!!!!!!]
And while you're thinking about the photo book, I think you should seriously consider doing a book about being a parent of a child with DS - really - you could use your blog as the working manuscript - you are so eloquent in your writing and so honest in your expressions of emotions. And there are so many individual ways to respond to any circumstance but often the "help" or "guide" books only come at the issue from one perspective, which is not helpful to everyone out there. You could offer such a great viewpoint that would resonate with many others who may not connect with any of the books already out there. Seriously, think about it.
On July 7, 2008 our sixth child, Finnian, was born at home into loving hands. Shortly after he was born, we learned that he has Down syndrome. This is the ongoing story of how our family is being transformed by this little boy.
Hi! I'm Lisa, a 40-something Wonder Mom to six kiddos: Kevin (14), Joey (9), twins, Annabelle and Daisy (6), Lilah (4) and Finnian (3). Oh, and my husband is the multi-talented Michael. He tries to keep me in check, but I just keep on writing.
Adieu
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After more than two years and 555 posts (556 counting this one!), I'm
saying goodbye to Adventures in Motherhood. I'm ready for a change, and
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13 comments:
You just do it like everything else you've always done, Lisa! You can, I know you can. Start collecting photos now from every contact you have...and make contact with the organizers of any and all DS groups...from medical to emotional support...I bet one or more of those groups can put you in touch with a publisher and/or point you in the direction of self-publishing. Great idea!!!
i second carla! i don't think it'd be too difficult!!! i think you should totally go for it!!!
I agree and would love to help you! I have an amazing photographer as well that might like to get involved and could possibly donate her time/services so that all the photos have the same "vibe". I know there are video montages on you tube with some of the most gorgeous photos of kids and babies with down syndrome so it totally is possible!!! You GO girl!!!
Jen
hey, i have one for you! it's a very obscure book, hard to find, but beautiful too...i've been wanting to find a home for it. send me your address and i'll mail it to you!
jennifergrafgroneberg@yahoo.com
xo
oh, hey? which isn't to say that there isn't room for one more...there's always room for one more great book!
xo
I definitely think we need one state-side...been thinking about it for a long time...but I was also wondering if you've heard of Conny Wenk? Scroll through her blog...you will be amazed at the photos. Not all the kids have DS...but MANY MANY MANY of them do.
http://connywenk.blogspot.com/
I absolutely LOVE the idea and am interested in helping in any way that I can!
What a beautiful idea Lisa!!!. I will LOVE to see MANY books full of photos of individuals with Ds, all ages. I will be the first one (or one of the first)to buy them. :)
Have you seen the Beautiful Faces calendar? It is adorable kids with Ds. You can find it on Amazon. It's along the lines of your idea.
What a wonderful idea.....
I have a link for you: Not the same exact thing, but a coffee table type book.
http://www.bandofangels.com/
The book is called: Common Threads.....
Cynthia Kidder [the founder] also beautiful note cards and calendars.
Also, we should hire Conny Wenk from Germany.....go to this link and keep scrolling.....you'll be in heaven of all the beautiful people she photographs with Down syndrome [I think she needs to come to the States and photograph Sir Finnian]
http://www.connywenk.blogspot.com/
and the current link I put on my blog had a project that is being done in the UK of professional photographers and people with T21...they have a calendar, but not a coffee table book as of yet.
I think you are on to a beautiful project [and I'll buy the first copy!!!!!!]
Thinking of you.
Great Idea! I'd love to help in anyway possible :) Sonia
And while you're thinking about the photo book, I think you should seriously consider doing a book about being a parent of a child with DS - really - you could use your blog as the working manuscript - you are so eloquent in your writing and so honest in your expressions of emotions. And there are so many individual ways to respond to any circumstance but often the "help" or "guide" books only come at the issue from one perspective, which is not helpful to everyone out there. You could offer such a great viewpoint that would resonate with many others who may not connect with any of the books already out there. Seriously, think about it.
lisa, what a wonderful idea! check out blurb. you can make your own beautiful, professional books there.
best of luck,
holly
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